Research in Progress

Research in Progress

Dialysis patient research setting partnership
Collaborators: Mark Lambie and Sandip Mitra (UKKRC CSG Leads), Paula Ormandy, Joseph Chilcot, Ken Farrington (BRS), Paul Bristow & Fiona Loud (Kidney Care UK), Ags Odudu
Funding: to be confirmed

Difficult Conversations Booklet: a resource for health professionals to help them talk to people with advanced kidney disease about palliative care issues
Principal Investigator: Anna Winterbottom Leeds Teaching Hospitals NHS Trust
Award: £34,102


Understanding the holistic experiences of living with a kidney transplant
Principal Investigator: Joanne Reid, Queen’s University Belfast
Award: £28,710


Engaging and supporting women with Chronic Kidney Disease with preconception decisionmaking: A mixedmethods study (CKDENGAGE)
Principal Investigator: Sian Griffin, Cardiff and Vale University Health Board
Award: £49,982


A Nurse-led study of Renal function Assessment with Point of care creatinine In Diverse populations (RAPID) 
Principal Investigator: Danilo Nebres, King’s College Hospital NHS Foundation Trust
Award: £21,588


What is the impact of a low AGE diet on SAF levels in Kidney Transplant Recipients?
Principal Investigator: Catherine Johnson, Derby and Burton University Hospitals NHS Foundation Trust
Award: £18,787


Engaging patients in the development and use of a selfmanagement behaviour scale for patients with chronic kidney disease on dialysis in the UK. estigator: Helen Munro Wild, University of Hertfordshire
Award: £27,046

Tailoring Acceptance and Commitment Therapy (ACT) for patients receiving renal dialysis (18-005)
Principal Investigator: Professor James Elander, Professor of Health Psychology, University of Derby
Award: £39,962


Does measuring patient experience of kidney care benefit patients?.(18-006)
Principal Investigator: Dr Janine Hawkins, Senior Research Fellow, University Of Hertfordshire
Award: £19,797


A multi Professional Scoping Review to Examine Care Priorities and Outcomes for Frail Older Patients with Advanced CKD (4-5) (18-007)
Principal Investigator: Dr Helen Hurst, Consultant Nurse, Manchester University Foundation Trust
Award: £17,754.91


Wellbeing and Lifestyle for Transplantation (WALT) (18-008)
Principal Investigator: Dr Lina Johansson, Clinical Academic Dietitian, Imperial College Healthcare NHS Trust
Award: £16,522.93


Access to Transplantation and Transplant Outcome Measures (ATTOMic) (18-013)
Principal Investigator: Dr Stephen Marks, Reader and Consultant In Paediatric Nephrology, Great Ormond Street Hospital for Children NHS Foundation Trust
Award: £64,402

Understanding Treatment Burden And Enhancing Capacity For Older People With Chronic Kidney Disease (17-004)
Principal Investigator: Dr Simon Fraser, Clinical Lecturer in Public Health, Southampton General Hospital
Award: £39,1076


Cultural Influences On Physical Activity And Exercise Beliefs In Patients With Chronic Kidney Disease.(17-008)
Principal Investigator: Dr Sharlene Greenwood, Consultant Renal Physiotherapist, King’s College Hospital
Award: £30,966.70


GAME ON! Games And Gamification To Improve Self-management In Children And Young People With A Chronic Kidney Disease (17-020)
Principal Investigator: Dr Arvind Nagra, Consultant Paediatric Nephrologist and Clinical Lead for Transitional Care, Southampton Children’s Hospital
Award: £45,969.13


Impact Of Social Media To Sustain, Retain And Support Kidney Patients Involved In Research (17-028)
Principal Investigator: Dr Cristina Vasilica, Researcher in Digital/Social Media in Health/ Lead Greater Manchester Kidney Information Network, University of Salford
Award: £26,781


Specifying The Role Of Renal Carers In Psychological Interventions For Haemodialysis Patients From South Asian Backgrounds (17-032)
Principal Investigator: Dr Shivani Sharma, Head of Psychology Group & Associate Dean Education; Health Psychology, University of Hertfordshire
Award: £24,366

Frailty and risk of falling in patients with dialysis dependent chronic kidney disease (CKD) (16-003)
Principal Investigator: Dr Pelagia Koufaki, Research Fellow in Rehabilitation Sciences Victoria Hospital Renal unit, Kirkcaldy, NHS Fife School of Health Sciences, Queen Margaret University, Edinburgh
Award: £38,160


Development of a self-management behaviour scale [and guidance for clinical use] for people with Chronic Kidney Disease on dialysis in the UK (16-014)
Principal Investigator: Professor Ken Farrington, Consultant Nephrologist, Lister Hospital Renal Unit, Stevenage
Award: £25,876


Does incremental initiation of haemodialysis preserve native kidney function? A multicentre feasibility randomised control trial (16-020)
Principal Investigator: Dr Enric Vilar, Consultant Nephrologist and Senior Clinical Lecturer, Lister Hospital Renal Unit, Lister Hospital, Stevenage
Award: £25,844


Staff assisted Home Haemodialysis (aHHD) as an alternative modality in patients on in-centre Haemodialysis: a feasibility study (16-024)
Principal Investigator: Dr Kunaal Kharbanda, Clinical Research Fellow in Nephrology, Manchester Institute of Nephrology & Transplantation, Manchester Royal Infirmary, Manchester
Award: £18,682


Clean Intermittent Catheterisation: Exploration of factors that impact on successful CIC management for developing a new model of care to support Children and Families (16-026)
Principal Investigator: Massimo Garriboli, Consultant Paediatric Urologist, Evelina London Children’s Hospital, Paediatric Urology, London
Award: £36,453

High water intake versus standard care in APDKD – a randomised feasibility trial (15-004)
Principal Investigator: Dr Thomas Hiemstra, Senior Trials Fellow and Honorary Consultant Nephrologist, University of Cambridge, Cambridge Clinical Trials Unit
Award: £29,580


Patient perspectives of target weight management and ultrafiltration during haemodialysis (15-007)
Principal Investigator: Mr David Keane, Clinical Scientist, St James’s Hospital, Department of Renal Medicine, Leeds
Award: £23,962


Developing a novel integrative medication adherence, patient education, and quality of life skin cancer surveillance model for kidney transplant patients (15-009)
Principal Investigator: Dr Antonia Cronin Consultant Nephrologist and Honorary Senior Lecturer, Guy’s Hospital, MRC Centre for Transplantation, NIHR Biomedical Research Centre Transplant, King’s College, London
Award: £17,766


A pilot study on the impact of peer support for people with advanced kidney failure presenting late to renal services (15-018)
Principal Investigator: Ms Eleri Wood Consultant Nurse, King’s College Hospital, Unit 6, King’s College Hospital Business Park
Award: £8,460


The role of illness perceptions in designing psychological interventions for haemodialysis (HD) patients from South Asian backgrounds (15-025)
Principal Investigator: Dr Shivani Sharma, Head of Psychology & Associate Dean, Health Psychology, School of Life and Medical Sciences, University of Hertfordshire
Award: £23,386

Renal Patient Education: Does the reality of treatment live up to the education rhetoric? (14-002)
Principal Investigator: Dr Kate McCarthy, Renal Health Scientist, University Hospitals Coventry & Warwickshire NHS Trust
Award: £18,296


Development and Validation of a Physical Activity Questionnaire for Subjects with Chronic Kidney Disease (CKD-PAQ) (14-019)
Principal Investigator: Dr Sivakumar Sridharan, Renal Registrar, Renal Unit, Lister Hospital
Award: £14,935

Pre-emptive rehabilitation to prevent dialysis-associated morbidity (PREHAB) (13-007)
Principal Investigator: Ms Fiona Willingham, Clinical Lead Renal Dietician, Nutrition & Dietetic Department, Royal Derby Hospital
Award: £22,000


A randomised control trial comparing glycaemic benefits of active versus passive lifestyle intervention in kidney allograft recipients (13-019)
Principal Investigator: Dr Adnan Sharif, Consultant Nephrologist, Department of Nephrology & Transplantation Queen Elizabeth Hospital, Birmingham
Award: £18,000