BRS Affiliates

BRS Affiliates

Anaemia Nurse Speacialist Association - ANSA

ansa-logo-2002

ABOUT:
The Anaemia Nurse Specialist Association is a professional association, for nurses run by nurses.
The ANSA Vision is to:
• Act as a forum for healthcare professionals to share best practice and keep abreast of new developments
• Provide leading edge training and professional development
• Optimise the clinical management of patients by broadening our understanding of chronic disease
ANSA is seeking to continue to provide clinical and professional support to those working within anaemia management across all specialities. We believe this support will enhance the level of care provided to people requiring treatment for anaemia, improving their quality of life. The educational material provided puts the patient’s needs, insights and understanding core to the delivery of effective care
ANSA was founded by renal nurses in 2000 in response to the emergence onto the market of Erythropoietin stimulating agents (ESAs), and their more widespread use in practice. Nurses working in this area extended their role to monitor and manage patients who were prescribed ESAs. Many of these nurses worked in this new role in isolation. It was identified that nurses needed support and education to ensure they could providethe best care possible. The founder members, including Lesley Bennett, Karen Jenkins, Marie Chowrimootoo, Bernice Thompson, set up this new organisation with a vision
Deal with professional issues
Be a supportive network for anaemia nurses
Facilitate the sharing of practices and promote role development
Provide clinical supervision as anaemia nurses were working mainly in isolation
Challenge the inequity of patient care
Be influential in setting national standards for renal anaemia management
Be free from potential bias of individual drug companies

Their first ANSA conference was in 2002.
Since initiation ANSA has achieved
• Annual conference
• Masterclasses in anaemia associated with: oncology, diabetes, cardiology and iron deficiency
• In 2006 they were awarded a seat on the BRS council.
• EDTNA/ERCA Affiliation. ANSA have produced several papers for the EDTNA/ERCA electronic library
• Developed an informative and interactive website
• Developed elearning packages based on our own website, and Nursing Times elearning
• ANSA has been consulted on setting NICE guidelines for Managing Anaemia in Patients with
Chronic Kidney Disease (NICE CG 039 2006 and its 2010 update)
• ‘A guide to the administration of intravenous iron for people with anaemia of chronic kidney disease(CKD) in a non acute setting’ this was done in collaboration with BRS CKD forum (2008). (Now withdrawn due to updated MHRA recommendations)
• In a joint venture with EDTNA, ANSA developed and published ‘Haematology and the Patient with Chronic Kidney Disease – An Introductory Guide.
• Six monthly newsletter

 

RELATIONSHIP WITH BRS:
BRS Affiliate Group

VIEW WEBSITE

OTHER LINKS/RESOURCES:
https://www.nice.org.uk/guidance/ng8/resources/chronic-kidney-disease-managing-anaemia-51046844101

CONTACT:
Telephone – 01543 442190
Email – info@anaemianurse.org

Association of Renal Industries - ARI

ari

ABOUT:

The voice of the renal industry to the NHS, government, patients and the clinical community.

Our aims

To be a vehicle for the two-way communication of developments and innovations between industry and the NHS.

To develop an environment for true collaborative working with all stakeholders.

To ensure fair market access to all developments and innovations for the benefit of patients and the renal community.

To deliver industry consensus to all stakeholders within the renal community for the benefit of patients.

Who we are

The Association of Renal Industries (ARI) is the voice of the renal industry to the NHS, government, patients and the clinical community.

Our membership is made up of renal based companies comprising the speciality areas of:

devices, pharmaceuticals, service, nutrition, consulting, imaging and venture capital.

Our objectives

To influence renal policy, at all levels for the benefit of all stakeholders.

To identify current and future issues which may affect the renal industry and respond proactively.

Our strategy

The ARI is a key point of contact with the Department of Health, British Renal Society (BRS) and the Renal Association (RA).

We have close collaboration with the National Kidney Federation (NKF), Kidney Research UK, the Government / MPs, and other professional bodies / groups.

We are a registered stakeholder in the National Institute for Health and Care Excellence (NICE) guidance.

RELATIONSHIP WITH BRS:

We have a seat on BRS Council.  We provide the link between BRS and industry.

VIEW WEBSITE

CONTACT:

Alison Roche
ARI Secretariat
Five Oaks
Ottershaw Park
Ottershaw
Surrey
KT16 0QG
Email: info@ari-uk.net

Association of Renal Technologists - ART

 

ABOUT:

The purpose of ART is to promote the field of work shared by technicians, technologists, engineers, scientists and other members of the multi-professional team working within the sphere of Renal Technology. The Association has over 200 members and are represented in many Renal Clinics throughout the United Kingdom. Among its members are employees of the National Health Service and private sectors.
ART milestones include:
• Organising the ART Annual National Meetings well subscribed by Association of Renal Industries companies
• Providing significant input into the Modernising Healthcare Science Careers project.
• One of the founding bodies on the Voluntary Register for Clinical Technologists (VRCT) along with IPEM and IIE
• ART have had a representative on BSI committees for Peritoneal and Haemodialysis since 1982
• ART have had a representative on the executive of the Federation for Healthcare Science since its inception in 2003
• Participating in BRS Workforce Reviews
• Regularly represented on NICE Technical Reviews providing Technical Support
• Instrumental in producing the DoH/ MSC project approved Training Scheme for Renal Technologists
• Our Website helps promote communication between technologists throughout the world.

 

RELATIONSHIP WITH BRS:

Affiliate organisation

VIEW WEBSITE

CONTACT:

Roger Moore
r.moore@nhs.net

British Association For Paediatric Nephrology - BAPN

bapn

ABOUT:
BAPN Members are resident in the United Kingdom or Republic of Ireland at the time on nomination, and engaged in the practice or teaching of paediatric nephrology or closely allied disciplines, including adult nephrology, or in research in paediatric nephrology.

BAPN is a division of the Renal Association. Membership of the BAPN includes membership of the RA.  The BAPN welcome other professionals of the multidisciplinary team as members of the BAPN at a reduced rate subscription.

The aims of the Association are:

  1. To set and to improve the standard of medical care of children with renal disease. (Clinical guidelines will be based on medical evidence where it is available, supported by research and audit, and linked to patient/parent information)
  2. To formulate and express opinions on policy concerning the care of children with renal disease.

iii. To conduct clinical and scientific meetings in order to advance the knowledge and skills of doctors and other professionals with responsibility for children with renal disease.

  1. To conduct collaborative research and audit and to disseminate results.
  2. To consider the training, continuing education and professional development of paediatricians and other professionals caring for children with renal disease.

– See more at: http://www.renal.org/bapn/business-and-history

RELATIONSHIP WITH BRS:

Member

VIEW WEBSITE

CONTACT:

BAPNPresident@renal.org

British Association of Social Workers

basw-logo

ABOUT:
We are a network of social workers across the UK who works with patients, both children and adults, when they have kidney problems which require specialist health care.
The group meets three times a year at various locations across the UK to enable everyone to attend at least once a year. We have speakers from various groups and a study day once a year held the day before our AGM. The meetings count towards our PDR. We are funded by the British Kidney Patient Association (BKPA) and are able to pay travelling and accommodation costs up to a certain level (£70 for hotels). We also have reps on British Renal Society (BRS) and European Dialysis and Transplant Nursing Association (EDNTA) and these are supported through the group. We try to attend the NKF conference and BRS and can subsidise people to attend. We have links with BKPA and National Kidney Federation (NKF) and they attend our meetings every year or two to keep both parties informed of latest developments.
If you are not a member of this group already, but work with renal patients and would like to join us, then please contact Andrew Barnett on 01978 727 296, or via Andrew.Barnett@wales.nhs.uk
The group provides good peer support both through the meetings and via emails throughout the year.

Renal social workers membership:
Adults 24       Paediatrics 10     Associate 3
37 registered with the group in the UK previous recorded due for review January 2017.

RELATIONSHIIP WITH BRS:

The Renal Special Interest Group has a seat on the British Renal Society council.


VIEW WEBSITE

OTHER LINKS/RESOURCES:
Charities

The British Kidney Patient Association (BKPA)
www.britishkidney-pa.co.uk/grants.html
The BKPA offers financial assistance to adults and children at any stage of treatment if kidney disease is having a serious impact on quality of life and they are struggling on a low income. Applications must be made on the application form and supported by a renal social worker or member of the renal team.

United Utilities Trust Fund
www.uutf.org.uk
The fund can help with water and / or sewerage charges due to United Utilities Water. In certain cases the Trust can also consider giving help to meet other essential bills, household needs or priority debts. There is a specific application form.

The Willow Foundation
www.willowfoundation.org.uk
The Willow Foundation provides special days for seriously ill people between 16 and 40 years old. Every special day aims to provide beneficiaries and their loved ones with a break from the realities of their diagnosis and treatment. Applications must be made on the official form and be signed by the applicant, their responsible companion, and a medical professional involved in their care (this can be a social worker).

HoneyRose Foundation
info@honeyrosefoundation.org.uk
The HoneyRose Foundation was established in 2004 and continues to grow daily as we help more people. We hope that the number of special wishes we are able to grant continues to grow.
The HoneyRose Foundation is a national United Kingdom charity, we’ve received applications from Northern Ireland, Scotland and Wales as well as England.
The HoneyRose Foundation is the only UK charity that helps grant special wishes to adults (age 40+) from all over the United Kingdom.

Founder Lynn Duffy won Wish FM Woman of the Year 2012 and fundraiser of the year at The Pride of St Helens Awards.
The HoneyRose Foundation was one of the Knowsley’s Mayor’s Charities in the 2012/13 year.
Our Founder Lynn Duffy received her MBE award in 2016 for all of her hard work with the charity.

CONTACT:
Chair Person
Alison Danbury-Lee            01438 285450
Renal Social Worker         alison.danburylee@nhs.net
Lister Hospital
Secretary
Munira Asaria                            0207 188 4607
Specialist Social Worker              Munira.Asaria@gstt.nhs.uk
Senior Social Worker – Paediatric Nephro-Urology
Evelina London Children’s Hospital

Treasurer
Andrew Barnett                         01978 727296
Renal Social Worker                      Andrew.Barnett@wales.nhs.uk
Wrexham Maelor Hospital

British Psychological Society Renal Network

ABOUT:
The Renal Psychologists Network was formed in 2004 and exists to offer a supportive network to psychologists working in the renal context throughout the UK under the umbrella of the British Psychological Society: Faculty of Clinical Health Psychology (FacCHP). It includes Clinical, Counselling, Health and Research Psychologists working in renal medicine and/or renal transplantation in both paediatric and adult services.

Meetings: The Renal network meets at least twice a year for clinical practice and research study days.  In addition we have an online forum (via NHS networks) to enable the sharing of resources and information between renal psychologists.

Aims:

  • To promote the professional and scientific work of members of the network with an interest in people with kidney disease. To provide, foster and develop effective clinical services for people with kidney disease, their families and carers. To promote awareness of good clinical practice, current research, and service issues, through study days accessible to psychologists of all levels of experience
  • To provide an advice and support network which is easily accessible to individual psychologists working in the field of kidney disease
  • To collaboratively develop renal specific research to improve welbeing, clinical practice and outcomes for patients with kidney disease
  • To disseminate psychological knowledge about the needs of people with kidney disease and services required to meet their needs to the wider renal workforce
  • To support and advise on training of psychologists at all levels and training of other professionals working with people with kidney disease to meet their psychological needs
  • To advise other relevant organisations/bodies about the psychological needs of people with kidney disease and the services required to meet these needs
  • To advise the British Psychological Society and Divisions on matters related to kidney disease
  • To facilitate the development of local groups in pursuit of the aims of the network e.g. Renal Psychologists regional supervision groups

RELATIONSHIP WITH BRS:
Affiliated Organisation

VIEW WEBSITE

OTHER LINKS/RESOURCES:
http://www.bps.org.uk/networks-and-communities/member-microsite/dcp-faculty-clinical-health-psychology/networks-branches 

CONTACT:
Chair: Dr Emma Coyne
Renal Consultant Clinical Psychologist
Emma.Coyne@nuh.nhs.uk

British Transplantation Society - BTS

DGH Nephrologists

 

 

EDTNA/ERCA

edtna

ABOUT:

The European Dialysis and Transplant Nurses Association/European Renal Care Association (EDTNA/ERCA) was established in 1971 to address the special educational needs of nurses and other healthcare professionals caring for patients who suffer from Chronic Kidney Disease. EDTNA/ERCA is a multidisciplinary organization of individual members. Association membership is open to nurses, technicians, social workers, dieticians, unit managers, transplant co-ordinators, and any other professionals working with renal patients. EDTNA/ERCA currently has about 1600 members from more than 70 countries.

RELATIONSHIP WITH BRS:

EDTNA/ERCA is an affiliate to the BRS

VIEW WEBSITE

CONTACT:

EDTNA/ERCA Secretariat
Annie Davidson
Högs Byväg 118
SE-246 55 Löddeköpinge
Sweden
Phone + 46 46 70 96 24
E-mail: edtna_erca@adexcellentbranding.com

 

Kidney Care UK


ABOUT:
Kidney Care UK is the UK’s leading kidney patient support charity, providing practical, financial and emotional support for kidney patients and their families and campaigning to improve care services across the UK. For over 40 years the charity has been working to improve the quality of life for kidney patients and their families.

The charity provides direct patient support services through its national patient support and advocacy service, counselling support (which offers one-off or longer term counselling to patients and family members), patient information, an online patient community, as well as financial grants for those individual patients who are finding it hard to cope with kidney disease.

The charity works closely with health and social care organisations and professionals, funding a wide range of care improvement activities such as MDT posts in renal units (e.g. renal social workers, counsellors, and dieticians), quality improvement and evaluation projects, equipment and patient-centred research. Kidney Care UK has been one of the most consistent and significant grant makers to paediatric renal units across the UK.

Finally, Kidney Care UK works tirelessly to improve policy and practice in renal care in order to improve patient outcomes and reduce variation. Kidney Care UK gives patients a strong and influential voice at the highest level.

RELATIONSHIP WITH BRS:
Kidney Care UK is an affiliate member of the BRS and sits on the BRS Counsel. The charity has worked closely with the BRS for a number of years, particularly in the areas of promoting effective patient-centred multi professional care to improve the quality of life for people with kidney disease, their families and carers, and the funding and support of multi professional research into kidney disease and its management. The two organisations have an ongoing collaboration in their joint grants programme – The Kidney Patient Research Partnership – which offers an annual grants round with grants of up to £75,000.

VIEW WEBSITE

CONTACT:
Paul Bristow, Director of Marketing and Communications
paul.bristow@kidneycareuk.org
Tel: 01420 541424

National Kidney Federation - NKF

nkf

ABOUT:

Began 40 yrs ago, NKF  is a charity run by Kidney Patients For Kidney Patients.  They campaign on behalf of Kidney patients and provide patient support services

RELATIONSHIP WITH BRS:

Affiliate member

OTHER LINKS/RESOURCES:

Telephone HELPLINE  0845 601 02 09
200 Renal Medical Information Leaflets
NKF@kidney.org.uk

VIEW WEBSITE

CONTACT:

NKF, Coach Road, Shireoaks, Worksop, Nottinghamshire, S81 8BW
01909 544999

Renal Association - RA

Renal Nutrition Group - RNG

rng

ABOUT:
The Renal Nutrition Group (RNG) is for registered dietitians who work or have an interest in the specialist field of renal medicine and nutrition through clinical practice or research. The RNG promotes the role of the renal dietitian in the multidisciplinary team to service users and healthcare professionals. It also acts as the source of expertise in renal nutrition. Established in 1970, today it has 299 members, and is committed to delivering accurate, comprehensive information to facilitate standardised practice and demonstrate clinical effectiveness in the UK.

The BDA Renal Nutrition specialist group is dynamic; In June 2016 the RNG won the Specialist Interest Group of the Year Award from the British Dietetic Association (BDA). Throughout the year it delivers expert advice and encourages sharing of practice to meet the needs of the diverse roles of the renal dietitian via online group discussions, evidence based resources, audit databases, research, business meetings, professional development days and courses.

Aims

The aims of the BDA Renal Nutrition group for 2015-2018 are:

  • To support the BDA with the consultation for dietitians to be given supplementary prescribing rights.
  • To develop national evidence based outcome measures for renal dietetic intervention.
  • To encourage and support renal dietitians to undertake regular audit and research to demonstrate the effectiveness of their input.
  • To work with the food industry to establish the facts on the use of relevant food additives and discuss how this may affect people with CKD.
  • To promote the role of renal dietitians within the MDT to service users and other health care professionals through attendance at national conferences and courses.
  • To support consistency of practice by facilitating sharing of educational resources. To develop and review national RNG diet sheets and supporting evidence based rationale documents.

RELATIONSHIP WITH BRS:
The RNG help organise the annual BRS meeting and a RNG member also sits on the BRS research panel. Regular attendance of BRS committee meetings allows the RNG to influence the national agenda and update the wider multidisciplinary team of progress within renal dietetic care in the UK.

OTHER LINKS/RESOURCES:

VIEW WEBSITE

CONTACT:
Secretary, Louise Jackson: Louise.Jackson@sth.nhs.uk (working days Wednesday, Thursday, Friday)
Chair, Harriet Williams: harriet.williams@wales.nhs.uk

Renal Psychological Services Group - RPSG

ABOUT:
The principal aim of the RPSG is to encourage the provision of high quality psychological care of renal patients and their families. The group also aims to encourage and facilitate the provision of psychological care by other members of the multi-disciplinary team.  The methods used to achieve these aims will be to advance the personal development of its members and to provide quality psychological services in clinical practice, in research and audit, in education and training, in communication and advice.

Membership is open to any counsellor, psychiatrist, psychologist or assistant psychologist, psychotherapist or honorary/volunteer counsellor working in nephrology or renal psychological care.  Other health care professionals whose role includes the provision of psychological treatments shall also be eligible for membership.

The group has been in existence since the early 1990’s.

RELATIONSHIP WITH BRS:
Affiliate & Council Member

WEBSITE:
N/A at present, though this is a project we will be working on in 2017.

CONTACT:
Chair – Amanda Bevin  abevin@nhs.net  01227 864 380

UK Renal Pharmacy Group